The Sign For Home: A Novel

This reading group guide for The Sign for Home includes an introduction, discussion questions, ideas for enhancing your book club, and a Q&A with author Blair Fell. The suggested questions are intended to help your reading group find new and interesting angles and topics for your discussion. We hope that these ideas will enrich your conversation and increase your enjoyment of the book.

Introduction

When Arlo Dilly learns the girl he thought was lost forever might still be out there, he takes it as a sign and embarks on a life-changing journey to find his great love—and his freedom.

Arlo Dilly is young, handsome and eager to meet the right girl. He also happens to be DeafBlind, a Jehovah’s Witness, and under the strict guardianship of his controlling uncle. His chances of finding someone to love seem slim to none.

And yet, it happened once before: many years ago, at a boarding school for the Deaf, Arlo met the love of his life—a mysterious girl with onyx eyes and beautifully expressive hands that told him the most amazing stories. But tragedy struck, and their love was lost forever.

Or so Arlo thought.

After years trying to heal his broken heart, Arlo is assigned a college writing assignment that unlocks buried memories of his past. Soon he wonders if the hearing people he was supposed to trust have been lying to him all along, and if his lost love might be found again.

No longer willing to accept what others tell him, Arlo convinces a small band of misfit friends to set off on a journey to learn the truth. After all, who better to bring on this quest than his gay interpreter and wildly inappropriate Belgian best friend? Despite the many forces working against him, Arlo will stop at nothing to find the girl who got away and experience all of life’s joyful possibilities.

Topics and Questions for Discussion

1. When Arlo learns the concept of “the sublime,” it leads him to profound personal revelations, both happy and sad. Reread Arlo’s own definition of the concept in chapter 11. Have experienced the sublime? In what ways did that experience change your life?

2. If you began reading The Sign for Home without much familiarity with the DeafBlind community, what did you learn about DeafBlind culture that surprised or interested you?

3. A recurring theme in The Sign for Home is exploring how people lead ethical lives. Brother Birch and Molly follow the tenets of their faith, Arlo is influenced by a mix of religion and his gold star/red star system, and Cyril acts according to the professional code of conduct for ASL interpreters. Toward the end of the novel, Cyril says he “did the next right-wrong-ethical-unethical thing” when he drives off with Arlo, Shri, and Snap. How and why do other characters go against their personal code of ethics to do the “wrong” thing that is actually right?

4. Arlo narrates that the ASL sign for home was originally a combination of food and bed, but then it evolved to something that also resembles the ASL sign for someone kissing your face—“home went from being a place where you eat and sleep to the place where someone loves you.” If you were to make your own sign for home, what would it be? When you think of “home” what concepts or physical objects do you instantly envision?

5. While the novel tackles big questions and tragic moments in the characters’ lives, much of it is also very funny. What lines made you laugh, and how does Blair Fell use humor to help define his characters?

6. Cyril narrates that the “quintessential” interpreter face says we reside in a liminal world. At this point in the novel, why is Cyril more comfortable occupying a liminal space? In what ways does he demonstrate more personal agency in his life as a result of knowing Arlo?

7. What characteristics make Arlo and Shri a good match? How do their distinct personalities complement each other?

8. When Cyril takes the interpreter job with Tabitha, she tells him, “I can be independent and still need other people.” While Tabitha says this regarding the DeafBlind, it also holds true for Cyril. In what ways throughout the novel does he come to understand his own simultaneous need for independence and help from others?

9. When Molly admits to Cyril, Hanne, and Lavinia that she lied about Shri’s fate to Arlo, she tells them she now wants to put things right, otherwise she will never be able to forgive herself. Many characters in The Sign for Home struggle to forgive others and themselves. Who do you think is able to do so by the end of the novel?

10. Blair Fell depicts the secondary characters as vibrantly as he does the main characters. Which secondary characters did you connect with most, and why?

11. Arlo bravely and wisely tells Cyril that he and Shri don’t need him to be their hero: “Shri and I save ourselves . . . We don’t need hero. Understand? We hero ourselves.” How is Arlo his own hero? What qualities and actions lead him to saving himself by the end of the book?

12. The novel ends with all our main characters embarking upon a new chapter in their lives. What do you imagine the future holds for them? What do you think they’ll be doing in the next five years?

A Conversation with Blair Fell

While you have years of experience working as an ASL interpreter for the Deaf, did you do any specific research for this novel?

I did a lot of specific research for this novel, like speaking to ophthalmologists and attending a weeklong DeafBlind interpreting workshop at the Helen Keller National Center. I spoke to orientation and mobility trainers, as well as experienced one of the O/M trainings myself. I spoke to a couple of DeafBlind tech experts as well. These folks were extremely helpful. I also read a number of nonfiction books about the DeafBlind, including books by and about Helen Keller as well as Laura Bridgman who preceded her. I also researched a lot online, reading more contemporary personal accounts of DeafBlind folks, especially those who are working in the area of Protactile and disability rights. So many people were very helpful. But the bulk of my research was one-on-one interviews with DeafBlind individuals, either in person or via email; people like the poet and essayist John Lee Clark (a breathtakingly good writer who is DeafBlind!) as well as Divya Goel, a DeafBlind activist, and many others. A good DeafBlind friend of mine, Martin Greenburg, introduced me to many of the folks I interviewed, and he also helped me to understand some of the day-to-day challenges he faces. When the manuscript was finished, I also asked both a top interpreter for the DeafBlind and a DeafBlind woman out West to do a sensitivity read for me.

Was there a character you found easy to write? Who was most challenging to write?

Arlo was more of a slow discovery for me, and thus harder. I literally wrote hundreds of pages I cut trying to get to know him, including 150 pages before he was born learning who his parents were. I had really written enough for two books but had to cut it down. Cyril was a bit easier since he’s a middle-aged gay interpreter like me— although he has red hair and psoriasis, which I don’t have. (He also has more patience than me to be honest. I would have lost it in the lunchroom way earlier.) When I write, like many writers, I basically allow the characters to tell me who they are and what the story is. Molly was a challenge, as was Brother Birch—a challenge because I didn’t want them to be only evil. I had to find their motivations and their heart. Molly was especially a challenge because of the evolution she goes through. Hanne, one of my favorite characters, was a total surprise. She just had coffee with Cyril one day and she saw Arlo through the window and it was like bam!—I need her!

What does the sublime mean to you? Do you and Arlo share the same definition?

I think what I share with Arlo on my understanding of the sublime is that I cannot fully know how to solidify it easily in my mind, and when I try to sign it, I feel like I fall short. Words and signs are vessels that strive to express everything that we experience . . . and they can’t. Not fully. I like that Arlo refuses to settle on a sign or a series of signs for the sublime. Like him, I appreciate the search for that full meaning, but also respect its ineffability—its refusal to be captured.

What did you most hope to express about the DeafBlind experiences through your depiction of Arlo?

Arlo is an individual character. I don’t mean him to represent all DeafBlind people or experiences. His being an orphaned,Jehovah’s Witness who is kept isolated from the world is just as much part of his identity. But I did also want to give a window into both a DeafBlind world and that of an interpreter. So I talked to a lot of my DeafBlind friends about their desires, struggles, and frustrations with the world, and what they felt were their biggest challenges. Audism is a common theme—how the hearing world looks at everything through that lens, as if being hearing is the one and only way to find happiness or have value. This is why one should never say “hearing impaired”; it implies the Deaf need to be fixed and are somehow substandard. I guess I wanted to show how Arlo wants to live his life to its fullest and how the hearing-sighted world, among other things, can get in the way or worse. But also, how he, like many DeafBlind people I know, can and do find meaning, love, sex, fun, and fulfillment—and must also fight against oppression. I wanted to show that DeafBlind folks have the right to be wrong and can be flawed as well as heroic. But this, as I said, is a story about an individual—not a political idea or a way of presenting deaf-blindness as a monolith. It’s about Arlo Dilly, and his friendship with his interpreter and his best friends, and his love for Shri.

Do you have a favorite book written by a DeafBlind person? What DeafBlind writers do you recommend for people eager to read and learn more about this culture?

One of my favorite writers (period) is the poet and essayist John Lee Clark, who is DeafBlind and has Usher syndrome. For starters, he’s brilliant. His first book of essays is called Where I Stand: On the Signing Community and My DeafBlind Experience. I’m afraid that title might be off-putting. It doesn’t express how great these essays truly are or how broad their topics. His DeafBlind experience is only part of it. He has one chapter on how he might interpret the national anthem that is breathtaking and made me actually interested in the lyrics and backstory for the first time. He has a new book of essays coming out in spring 2023 called Touching the Future and another book of poems from Norton called How to Communicate: Poems in fall 2022. I can’t wait to read both!

Why did you decide to use Walt Whitman’s poem as the basis for Arlo’s assignment? Were there any other poems you considered using instead?

Good question. I did consider other poems, but I really love Whitman, and interpreting him is, as Cyril learns, hard but also doable because of the raw physicality of them. The more I can physically see something in my head the better I can interpret it. Whitman shows us the grass, the battlefield, the boys swimming. I can’t remember the other poems I considered. Been a long time.