This Endolife

My Struggles Travelling with Dysautonomia and MCAS

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Synopsis

Today I am sharing a personal experience podcast, in the hopes that it might help you. Social media in summer is full of people’s holiday pictures and I think for people with chronic illness, that can be quite isolating because we may not be able to travel or travelling can be hard to navigate. I’ve been sharing some of my videos and pictures of our travelling recently, and I’ve noticed that a lot of people make assumptions about what that means – they assume I’m well, happy and in a good place, and I think it’s important to share the reality. To me, travelling is worth it and the best thing I’ve done in my life, and I have no intention of stopping any time soon or settling down, but it comes with ups and downs and has come with some unique health challenges. I am grateful that endo hasn’t really played a part in many of these (except for some cycle disturbances which I’m working on), but it’s really been based around my mast cell activation syndrome and dysautonomia, which I was diagnosed with officially las