Empowered Patient Podcast

Building Focused Communities and Facilitating Relationships Between Patients and Pharmaceutical Companies with Jessica Ackerman Responsum Health

Informações:

Synopsis

Jessica Ackerman, the Vice President for Strategic Partnerships and Impact at Responsum Health, is focused on the insights that patients can provide drug companies and other people newly diagnosed or suffering from a chronic condition. Responsum is a digital-based educational community providing accurate scientific information, peer support, access to clinical trials, and a path by which drug companies can get real-world data.  Jessica explains, "Every disease focus that we have started has come from a partnership, some vested interest, from either a commercial sponsor or a pharmaceutical company, to build this robust community. Their interest is to gain the patient's voice and get insights, market research data, and real-world data from patients and family members to understand their gaps in care. So we have created a number of communities, like kidney disease CKD. We have glaucoma. We have pulmonary fibrosis, which is considered a rare disease, so we are in the rare disease and orphan disease space as well