Off-kilter With Rebecca Vallas

Learning from Long-Haulers about Rest and Radical Pacing

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Synopsis

This week, Off-Kilter returns to our ongoing series of conversations with social justice leaders digging into why, in the famous words of Audre Lorde, self-care is political warfare—and the role radical self-care plays in their own lives to sustain them in this work.  As we’ve explored a good bit in recent weeks as part of this series, the disability community harbors some of the greatest wisdom when it comes to radical self-care—with disabled people as modern-day oracles, as activist Alice Wong often puts it.  And to that end, for this week’s episode, Rebecca sat down with Lisa McCorkell, cofounder of the Patient Led Research Collaborative, a new organization that advocates for folks with long COVID; and Ryan Prior, a journalist-in-residence with TCF’s Disability Economic Justice Team, a board member of ME Action (which works to build awareness about a condition called ME/CFS), and author of The Long Haul.  Picking up on a conversation they had last July for the podcast about the patient advocacy revolut